Acthar Gel denials in California external review

In the California DMHC record, independent physician reviewers decided 60 published external-review cases involving Acthar Geland overturned the plan’s denial in 58.3%. That is a historical result among cases that reached this program, not a forecast for an individual appeal.

California DMHC decisions
60
2013–2026
Overturned
58.3%
35 denials reversed

Conditions behind Acthar Gel denials

What insurers denied — and how those fights ended.
CategoryDecisionsOverturned
Nephrotic Syndrome9
88.9%
Focal Segmental Glomerulosclerosis5
80%
Multiple Sclerosis5
80%
Rheumatoid Arthritis3
0%
Iga Nephropathy3
100%
Psoriatic Arthritis3
33.3%

What the insurer actually argued

Denials fall into different categories, and they don’t succeed equally — so the reason on your letter changes how you should answer it.
Reason givenDecisionsOverturned
Medical Necessity
The plan said the care wasn’t medically necessary. The most common fight, and the most winnable.
54
61.1%
Experimental/Investigational
The plan called the treatment unproven. These turn on published evidence, so the appeal is a literature argument.
6
33.3%
Typical time to a decision
6 days
Most land between 3 and 14 days
Handled as urgent
70%
Expedited when a delay would cause harm
Recent direction
Falling
81%55% overturned, last three years

What the reviewers wrote

Excerpts from the independent reviewers’ published findings — the actual reasoning, quoted, not summarised.

Where the denial was overturned

Nature of Statutory Criteria/Case Summary: The patient has requested authorization and coverage for Acthar Gel. High-dose corticosteroid therapy is the mainstay of treatment for acute exacerbations of multiple sclerosis (MS). Findings: The physician reviewer found that the U.S. Food and Drug Administration (FDA) approves the use of Acthar Gel, an adrenocorticotropic hormone (ACTH), for the treatment of exacerbations of multiple sclerosis in adults. Other therapies include plasmapheresis, generally reserved for treatment of relapses that are severe or refractory to treatment with high-dose corticosteroids or ACTH, and intravenous immunoglobulin (IVIG), sometimes used in patients for whom high-dose corticosteroids are contraindicated or not tolerated, but for which there is no consistent evidence regarding use in relapse management.
Medical Necessity · 2022 · IMR MN22-37375
Findings: The physician reviewer found that The patient has requested authorization and coverage for Acthar Gel 80 units/mL administered daily for two weeks. As noted in the medical literature, the recommended first-line therapy for patients with acute exacerbations of multiple sclerosis has been high-dose corticosteroid therapy. The U.S. Food and Drug Administration (FDA) has approved Acthar Gel for the treatment of exacerbations of multiple sclerosis in adult patients. Additional therapies include plasmapheresis and intravenous immunoglobulin (IVIG). Plasmapheresis is generally reserved for the treatment of severe relapses or patients who are refractory to treatment with high-dose corticosteroids or Acthar Gel. Intravenous immunoglobulin (IVIG) can be beneficial for patients when high-dose corticosteroids are contraindicated or not tolerated.
Medical Necessity · 2023 · IMR MN23-38945

Where the denial was upheld

Worth reading too — these show what an appeal has to overcome.
Nature of Statutory Criteria/Case Summary: The patient has requested authorization and coverage for Acthar Gel.Findings: The physician reviewer found that American College of Rheumatology guideline on the treatment of psoriatic arthritis notes, “In treatment-naive patients with active psoriatic arthritis (PsA), a tumor necrosis factor inhibitor (TNFi) biologic agent is recommended over an oral small molecule (OSM) as a first-line option. OSMs may be used instead of a TNFi biologic in patients without severe PsA and without severe psoriasis, those who prefer an oral drug instead of parenteral therapy, or those with contraindications to TNFi treatment, including congestive heart failure, previous serious infections, recurrent infections, or demyelinating disease.
Medical Necessity · 2021 · IMR MN21-35842
Nature of Statutory Criteria/Case Summary: The patient has requested authorization and coverage for Acthar gel.Findings: A research team was formed to comprised of rheumatologists, neurologists and dermatologists to establish a multidisciplinary treatment consensus to standardize patient care for patients with polymyositis (PM) and dermatomyositis (DM). According to their treatment consensus, the first line treatment for polymyositis is glucocorticoids for remission induction. According to the consensus statement, immunosuppressants can be given to patients who are resistant to glucocorticoids. Immunosuppressants are also useful to assist with the tapering of glucocorticoids. Under the consensus statement, immunosuppressants which can be utilized for the treatment of polymyositis include tacrolimus, cyclosporine, CellCept, methotrexate and azathioprine.
Medical Necessity · 2020 · IMR MN20-34045

Figures and quotations on this page come from 42,749 published decisions in the California DMHC Independent Medical Review dataset. These are California external-review outcomes. Other state and federal programs have different eligibility rules, processes, and current availability; the rates here do not transfer to those programs or predict an individual result. Excerpts are quoted verbatim from the public record and describe this treatment generally, not any individual case.

How to use this in your appeal

These outcomes describe eligible cases completed through California DMHC’s Independent Medical Review program. They do not estimate the chance that an internal appeal, an external review in another jurisdiction, or your individual case will succeed. Use the record to identify evidence patterns involving Acthar Gel, then check the rights and deadlines that apply to your plan.

SOURCE: CALIFORNIA DMHC INDEPENDENT MEDICAL REVIEW OUTCOMES (CHHS OPEN DATA) · AGGREGATES + DEIDENTIFIED DECISION EXCERPTS/REFERENCE IDS · METHODOLOGY

Not legal or medical advice. Coverage Rights is a self-help tool that helps you prepare your own appeal. For advice about your specific situation, talk to a licensed attorney or your doctor.

Denied Acthar Gel? Use the California record to prepare.

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