Intellectual Disability denials in California external review
In the California DMHC record, independent physician reviewers decided 24 published external-review cases involving intellectual disabilityand overturned the plan’s denial in 54.2%. That is a historical result among cases that reached this program, not a forecast for an individual appeal.
Most-fought treatments for intellectual disability
| Category | Decisions | Overturned |
|---|---|---|
| Occupational Therapy | 3 | 66.7% |
What the insurer actually argued
| Reason given | Decisions | Overturned |
|---|---|---|
Medical Necessity The plan said the care wasn’t medically necessary. The most common fight, and the most winnable. | 18 | 50% |
Experimental/Investigational The plan called the treatment unproven. These turn on published evidence, so the appeal is a literature argument. | 6 | 66.7% |
What the reviewers wrote
Where the denial was overturned
Findings: The physician reviewer found that Nature of Statutory Criteria/Case Summary: The patient’s parent has requested authorization and coverage for a safety enclosure canopy for use with a cubby safety bed. As noted in the medical literature, hospital and customized hospital beds may be required for use in the homes of patients with mobility problems. Patients who require special positioning, the use of special attachments, or the need for elevation of the head of the bed may benefit from a hospital or customized hospital bed. In addition, patients with other risk factors, including patients with cognitive impairments or weakness, may require additional safety measures, such as specialized padding or an enclosed bed to prevent falls and entrapment. In this case, the patient has autism and intellectual disability.
Nature of Statutory Criteria/Case Summary: An enrollee has requested authorization and coverage for gene testing. This patient’s provider has recommended whole exome sequencing to assist in this patient’s diagnosis and treatment given his history of autism, intellectual disability, syncope, hallucinations, and arachnoid cyst. Whole exome sequencing is a comprehensive test, which identifies changes in a patient’s DNA that are causative or related to their medical concerns. In contrast to current sequencing tests that analyze one gene or small groups of related genes, exome sequencing analyzes the exons or coding regions of over 20,000 genes. Neurodevelopmental disorders are often complex clinical scenarios attributed to single-gene mutations that may be detected through exome sequencing.
Where the denial was upheld
Nature of Statutory Criteria/Case Summary: The patient’s parent has requested authorization and coverage for inpatient psychiatric hospital program with a complete medication wash and a psychiatric evaluation. The American Academy of Child and Adolescent Psychiatry (AACAP) and American Association of Community Psychiatrists (AACP) have unified the Child and Adolescent Level of Care Utilization System (CALOCUS) and the Child and Adolescent Service Intensity Instrument (CASII) into a single instrument, the Child and Adolescent Level of Care/Service Intensity Utilization System (CALOCUS-CASII). This instrument provides a reliable framework for determining the appropriate level of care for adolescents needing mental health treatment. Using CALOCUS-CASII, providers score patients on a scale of 1-5 using a six-pronged Dimensional Rating System.
Nature of Statutory Criteria/Case Summary: the parent of a 13-year-old female enrollee has requested authorization and coverage for neuro-processing disorder evaluation and health care services; auditory processing disorder evaluation and health care services; sensory processing disorder evaluation and health care services; primitive reflex vision disorder evaluation and health care services; and optometric vision therapy. Findings: The physician reviewer found that the patient has severe limitations in speech, which is limited to a few words, and intellect. Per the record, attempts to test the patient for auditory processing disorder could not be completed due to the patient's inability to follow rudimentary directions. The patient’s parent has requested multiple therapeutic tests and interventions to determine and improve the patient’s functional skills.
Figures and quotations on this page come from 42,749 published decisions in the California DMHC Independent Medical Review dataset. These are California external-review outcomes. Other state and federal programs have different eligibility rules, processes, and current availability; the rates here do not transfer to those programs or predict an individual result. Excerpts are quoted verbatim from the public record and describe this condition generally, not any individual case.
These outcomes describe eligible cases completed through California DMHC’s Independent Medical Review program. They do not estimate the chance that an internal appeal, an external review in another jurisdiction, or your individual case will succeed. Use the record to identify evidence patterns involving intellectual disability, then check the rights and deadlines that apply to your plan.
SOURCE: CALIFORNIA DMHC INDEPENDENT MEDICAL REVIEW OUTCOMES (CHHS OPEN DATA) · AGGREGATES + DEIDENTIFIED DECISION EXCERPTS/REFERENCE IDS · METHODOLOGY