Developmental Delay denials in California external review

In the California DMHC record, independent physician reviewers decided 53 published external-review cases involving developmental delayand overturned the plan’s denial in 77.4%. That is a historical result among cases that reached this program, not a forecast for an individual appeal.

California DMHC decisions
53
2002–2025
Overturned
77.4%
41 denials reversed

Most-fought treatments for developmental delay

What insurers denied — and how those fights ended.
TreatmentDecisionsOverturned
Occupational Therapy19
73.7%

What the insurer actually argued

Denials fall into different categories, and they don’t succeed equally — so the reason on your letter changes how you should answer it.
Reason givenDecisionsOverturned
Medical Necessity
The plan said the care wasn’t medically necessary. The most common fight, and the most winnable.
43
76.7%
Experimental/Investigational
The plan called the treatment unproven. These turn on published evidence, so the appeal is a literature argument.
10
80%
Typical time to a decision
20 days
Most land between 13 and 21 days
Handled as urgent
9.4%
Expedited when a delay would cause harm

What the reviewers wrote

Excerpts from the independent reviewers’ published findings — the actual reasoning, quoted, not summarised.

Where the denial was overturned

Nature of Statutory Criteria/ Case Summary: The enrollee’s parent requested authorization and coverage for a Rifton standing machine.Findings: The physician reviewer found that the enrollee has a diagnosis of hypotonia leading to significant developmental delay. He has been receiving outpatient physical therapy (PT) services with focus on improving overall functional mobility, strength, balance, and development of motor skills. In addition to PT services, he also receives occupational therapy (OT) and speech therapy (ST). He is currently utilizing bilateral supra-malleolar orthosis (SMOs), is non-ambulatory, has no independent mode of mobility, and is dependent for many activities of daily living and mobility skills. The enrollee has decreased muscle strength and low tone throughout his extremities and his trunk. He demonstrates rolling skills.
Experimental/Investigational · 2019 · IMR EI19-31260
Nature of Statutory Criteria/Case Summary: The parent of an enrollee has requested authorization and coverage for genetic testing (cytogenomic SNP microarray). The Health Plan has denied this request indicating that the requested service is not medically necessary for treatment of the enrollee’s congenital cytomegalovirus and developmental delay. At issue in this case is whether the requested genetic testing (cytogenomic SNP microarray) is medically necessary for treatment of the patient’s medical condition.Per researchers, the clinical utility of chromosomal microarray (CMA) is well established. CMA is now considered first-line genetic testing for individuals with developmental delays and autism spectrum disorders. It is important to note that CMA technology has been shown to provide clinically actionable information.
Medical Necessity · 2018 · IMR MN18-29970

Where the denial was upheld

Worth reading too — these show what an appeal has to overcome.
Nature of Statutory Criteria/ Case Summary: The enrollee’s parent is requesting authorization and coverage for Applied Behavior Analysis (ABA) therapy. The patient is a nine-year-old male currently diagnosed with absent corpus callosum, Dandy-Walker malformation, developmental delay, epilepsy, and developmental speech and language disorder. Neurology evaluation indicates delayed milestones, with his receptive skill at around 80%. He displayed difficulty with non-verbal expressions, rigid thinking patterns, fixated interests and hyper/hyposensitive reactions to stimuli. The physician noted these were all characteristics of developmental delay and not autism spectrum disorder (ASD). However, the patient started applied behavior analysis (ABA) therapy. The record indicates he still did not meet ASD criteria, but had delayed social skills and repetitive behavior.
Medical Necessity · 2019 · IMR MN19-31465
Nature of Statutory Criteria/Case Summary: An enrollee has requested authorization and coverage for sensory integration therapy. There is insufficient evidence in current medical literature to support the use of sensory integration therapy in this clinical setting over any standard available therapy. In a systematic review and meta-analysis of intensive multidisciplinary intervention for pediatric feeding disorders, Sharp and colleagues conclude, “Intensive, multidisciplinary treatment holds benefits for children with severe feeding difficulties.” Marshall and colleagues note that multidisciplinary intervention for childhood feeding difficulties may involve operant conditioning or systematic desensitization intervention, which help children improve in dietary variety/intake, and more reductions in difficult mealtime behaviors in children with autism spectrum disorder.
Experimental/Investigational · 2021 · IMR EI21-35932

Figures and quotations on this page come from 42,749 published decisions in the California DMHC Independent Medical Review dataset. These are California external-review outcomes. Other state and federal programs have different eligibility rules, processes, and current availability; the rates here do not transfer to those programs or predict an individual result. Excerpts are quoted verbatim from the public record and describe this condition generally, not any individual case.

How to use this in your appeal

These outcomes describe eligible cases completed through California DMHC’s Independent Medical Review program. They do not estimate the chance that an internal appeal, an external review in another jurisdiction, or your individual case will succeed. Use the record to identify evidence patterns involving developmental delay, then check the rights and deadlines that apply to your plan.

SOURCE: CALIFORNIA DMHC INDEPENDENT MEDICAL REVIEW OUTCOMES (CHHS OPEN DATA) · AGGREGATES + DEIDENTIFIED DECISION EXCERPTS/REFERENCE IDS · METHODOLOGY

Not legal or medical advice. Coverage Rights is a self-help tool that helps you prepare your own appeal. For advice about your specific situation, talk to a licensed attorney or your doctor.

Fighting a denial for developmental delay? Use the California record to prepare.

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